Author Archive

New Patient Story: Melissa from Birmingham, Alabama, U.S.A.

The Foundation is grateful to Melissa for sharing her story with us and with all our followers, thereby raising awareness and hope for those still struggling. Like so many of the patient stories we hear, before being properly diagnosed, she was first seen in psychiatry, until she had a seizure,…

Latest News from the Foundation – Tanisha’s Story

Yesterday was World Encephalitis Day 2019 and this story only reached us a little late in the day. Nevertheless, here at the Foundation we raise awareness practically 365 days a year. We are grateful to Tanisha for sharing her uplifting story with us and with you. We rejoice and celebrate…

New Movie Trailer! The New Exorcists: How New Science is Casting out Old Demons

In celebration of World Encephalitis Day (WED), February 22, the Foundation is very pleased to release a trailer for the upcoming documentary on anti-NMDA receptor encephalitis, which is presently in production with the support of Little Wolf Productions. The New Exorcists: How New Science is Casting out Old Demons is a…

New Study: Sleep Disturbances in Autoimmune Encephalitis

Seizures and movement disorders are very common in anti-NMDA receptor encephalitis, as well as other forms of autoimmune encephalitis (AE) and researchers have undertaken to study them more closely.Another very commonly seen feature in most AE patients are sleep disturbances, that may manifest in a variety of ways, including insomnia,…

Thank you and Congratulations – Travel Award Recipient

The Foundation would like to thank all those neurology and psychiatry trainees who applied for the Foundation’s Travel award to attend the Symposium titled Autoimmune Encephalitis: The Bridge between Neurology and Psychiatry, at Weill-Cornell Medical College in New York City, on April 6th. It was truly a very hard decision…

Denise’s story

We are grateful to Denise for sharing her story with us – a crucial step in her recovery and healing journey.  We know that the process is long and often-times, a step forward and two steps back, but that over time, things do get better. We wish her continued healing,…

Evelyn’s story

The story of Evelyn is typical of so many who are first seen in psychiatry due to the predominance of psychiatric symptoms, leading to an admission to a psychiatric ward or hospital.  Only after the patient develops seizures and/or a fever is an organic cause considered. Thanks to her husband’s…

La Historia de Mercedes /Mercedes’ Story/Le témoignage de Mercedes

Para todos los Hispano parlantes, nos complacecompartir con ustedes la historia de Mercedes, unasobreviviente Espanola de anti-NMDA. Mil gracias, Mercedes! For all Spanish-speakers, we are pleased to share with you the story of Mercedes, a Spanish survivor of anti-NMDA. Many thanks, Mercedes! Pour tous les Hispanophones, nous avons le grand…