Alessia Bellino, Italy, 31yrs (2015)

The onset of the disease I was a normal, healthy 31-year old woman, happily married, a hard worker, an anthropologist by training; I loved to run, spend free-time with my family and friends, travel and draw comics for hobby.No one could suspect what would happen to me. At the beginning…

The Story of G, 2007-2017, New Zealand

(2007) My daughter 13yrs old at the time, appeared in a coma-like state with extreme catatonia &was admitted in child psychiatric ward. 6 long years drugged-up & treated as a psychiatric patient, diagnosed with bipolar. (2013) Age of 18yrs, she died while still in mental health, psychiatric care before rushing…

Blake’s Story, Age 15, USA

My name is Chrystal Carpenter. I am a single mom and a business owner. My son, Blake, turned 15 in January 2017. He was born healthy, but his medical issues began when he was diagnosed with Meningoencephalitis at just three weeks old. As a result of that, he has Epilepsy…

Emily Louise’s Story, Age 22 at onset, Vancouver, B.C.

Her Mind speech Dear World, I’m still basking in the afterglow of a night filled with love, community, good food, soulful music and awareness/fund-raising about Anti-NMDA Receptor Encephalitis. As the adrenaline starts to slowly fade, I thought I’d share the words I spoke last night, on the off chance somebody…

Kimberly’s Story, Ohio, Age 27

My story starts in late 2011, in the fall. I was a 27-year old mom of one, married for 2 years and by most standards living a "normal life". I started noticing red patches that would creep up my chest, neck and face. It would be on one side of…

Marks Story, Age 62, U.S.A.

My wife Sherry loves Ocean City, NJ more than anyone I know. It might be for Mallon's many different types of sticky buns or an awesome slice of pizza from Mankos & Mankos. Her beach- bag packing skills are legend. We try to visit there every summer and make day…

David’s story, 31 years old

ANMDARE Foundation Benefit Concert Speech (download pdf document) Peace be to earth and to airy space Peace be to heaven, peace to the waters Peace to the plant and peace to the trees! May all the powers grant to me peace! By this invocation of peace may peace be diffused! By…

My 5 year old daughter case of Anti NMDA

Everything began end of March 2011 when she complained about a tingling on her right foot. After a week she began to lose her balance and her toes were moving. That Sunday we decided to bring her to emergency to our local children`s hospital. After doing some testing, they told…