AE Day of Strength, 27 July 2019 – AE Leadership and Engagement at Texas Children’s Hospital
Posted on August 06, 2019
For the second year in a row, Texas Children’s Hospital and its Autoimmune Encephalitis Clinic, under the direction of pediatric rheumatologist, Dr. Eyal Muscal, have hosted a day of recognition of the families and survivors of the various forms of Autoimmune Encephalitis (AE). In 2018, it was AE Day of Hope and this year it was AE Day of Strength.
The Foundation was delighted to have been invited to participate, with an invitation to its president, Ms. Nesrin Shaheen, to be a guest speaker.
Ms. Shaheen’s presentation addressed the importance and the huge strides that have been made by the AE Community of Caregivers and Survivors over the past 10 years in raising the profile of AE and particularly, anti-NMDA receptor encephalitis which still leads the pack in prevalence.
For the first time this year, a break-away session was organized for families of adult patients, which was standing room only.
We salute, Dr. E. Muscal for his enlightened leadership in recognizing the families that are affected by this important disease!