Official Patient Advocacy Organisations to the ExTINGUISH Trial
Assistant Professor , DO
Patient Type(s):
Medical Specialty: Pediatric Neurology, Neuroimmunology, Neurodevelopmental Disabilities
Experience Diagnosing and Treating Patients:
Cincinnati Children's Hospital
3333 Burnet Ave
Clinical Fellow , MD, MSc, FRCPC
Patient Type(s):
Medical Specialty: Neurology
Experience Diagnosing and Treating Patients:
Columbia University Irving Medical Center
710 W 168th Street, Suite 1401, New York, NY
Professor of Neurology; Co-Director of Autoimmune Encephalopathy Clinic , MD, PhD
Patient Type(s):
Medical Specialty: Neurology
I direct a clinical and research program in clinical autoimmune encephalopathy and rapidly progessive dementia (RPDs) at UCSF Medical Center, San Francisco, CA
Experience Diagnosing and Treating Patients:
University of California, San Francisco (UCSF)
Department of Neurology, Memory and Aging Center Box 1207
Consultant , MD
Patient Type(s):
Medical Specialty: Radiation Oncology
Experience Diagnosing and Treating Patients:
Mayo Clinic, Phoenix, Arizona
6365 E Sunnyside Dr
, MD
Patient Type(s):
Medical Specialty: Neurology
Experience Diagnosing and Treating Patients:
Barnes Jewish Hospital
1 Barnes Jewish Hospital Plaza, St. Louis, Minnesota
Adjunct Assistant Professor of Psychiatry , M.D., Ph.D.
Patient Type(s):
Medical Specialty: Psychiatry
My immunopsychiatry clinic provides consultations for patients with immune-related psychiatric symptoms. After the appointment we will give you a detailed clinical impression and with recommendations. These recommendations will be provided to your psychiatrist and other providers (neurologist, rheumatologist, or general practitioner). If you do not currently have a psychiatrist and would like ongoing care we can refer you to an appropriate provider. In some cases the clinic will offer time-limited or on-going care in our clinic.
We provide consultations for:
• New psychiatric symptoms that began after initiation of immune therapy
• Autoimmune disease (e.g. multiple sclerosis, systemic lupus erythematous) with suspected secondary psychiatric symptoms
• Residual psychiatric symptoms due to autoimmune encephalitis
• Atypical psychiatric presentations with concern for an immune mediated process
Experience Diagnosing and Treating Patients:
University of California, San Francisco
401 Parnassus Avenue
Chief of Psychiatry , MD
Patient Type(s):
Medical Specialty: Psychiatry
Experience Diagnosing and Treating Patients:
Lakes Region General Hospital
80 Highland St, Laconia, NH 03246
, MD
Patient Type(s):
Medical Specialty: Neurology
Experience Diagnosing and Treating Patients:
UT Southwestern Medical Center
5323 Harry Hines Blvd
Assistant Professor , MD
Patient Type(s):
Medical Specialty: Neurology and Epilepsy
Experience Diagnosing and Treating Patients:
NYU Langone
223 E 34th St, New York, NY, 10016
Chief of Neurology , MS, MD
Patient Type(s):
Medical Specialty: Pediatric Neurology
Blythedale is a Children’s Specialty Hospital that emphasizes rehabilitation of children from 0 – ~ 19 years old. We specialize in the care of medically fragile children with intensive rehabilitation needs. We have cared for more than 25 patients with ANMDAR encephalitis. We also have a very active TBI (traumatic brain injury) program and ventilator weaning program. We have pediatric staffing 24/7 and a day hospital and longer term care program. There is a K-12 school adjacent to the hospital. We have an active research collaboration with Burke Medical Research Institute (affiliated with Cornell University Medical Center).
Experience Diagnosing and Treating Patients:
Blythedale Children's Hospital
95 Bradhurst Avenue, Valhalla, NY 10595-1637 USA